💜 Sage’s Fight — The Little Girl With a Warrior’s Heart 💜

Sage is only nine months old.
Nine months — a time when most babies are just learning to crawl, to babble, to explore the world with wide-eyed wonder.

But for Sage, life has been a very different kind of journey.
One that began with fear, uncertainty, and a strength far beyond her tiny frame.

From the moment she entered this world, Sage was a fighter.
Her mother’s pregnancy had been high-risk from the start — long nights of worry, endless doctor appointments, and prayers whispered in the quiet hours.
But when Sage was finally born, her parents thought the hardest part was over.
They held her close, memorizing every tiny feature — her soft cheeks, her gentle sighs, her heartbeat pressed against theirs.
For a moment, everything felt perfect.

Until nine days later.

That was when the seizures began.
At first, it was just a small twitch — something her parents almost missed.
But then came another.
And another.
Soon, the episodes became longer, stronger, and more terrifying.
Sage’s tiny body would stiffen, her eyes would roll back, and her parents could do nothing but hold her and pray it would pass.

Doctors ran test after test.
EEGs, MRIs, blood work — an endless blur of machines and medical terms that no parent should ever have to learn.
And then came the diagnosis: Sturge-Weber Syndrome — a rare neurological disorder caused by abnormal blood vessels on the brain’s surface.
It’s an unpredictable disease.
One that often brings uncontrollable seizures, developmental challenges, and in some cases, vision loss or paralysis.

For Sage’s parents, it felt like the world had stopped.
How do you protect your child from something living inside her own brain?
How do you fight an invisible storm that comes without warning?

Since that day, their lives have been measured not in milestones, but in moments — moments of calm between seizures, moments when Sage’s laughter breaks through the fear, moments when she simply opens her eyes and smiles.

She’s been in and out of the hospital since she was nine days old.
Each stay brings a new wave of hope and heartbreak.
Her parents have watched her endure blood draws, IVs, EEG leads glued to her tiny head, and medications that line up in rows on the kitchen counter.
They’ve tried combinations of anti-seizure drugs — one after another — hoping for relief.
But the seizures keep coming.

Sometimes, they happen in the middle of the night, jolting her mother awake to the sound of Sage gasping for air.
Sometimes, they happen in the middle of a smile — a cruel reminder of how fragile each happy moment is.
And yet, through it all, Sage fights.
Every single day.

Her parents say she has the brightest spirit — that even on her hardest days, she finds a way to smile.
Her favorite sound is her dad’s voice.
Her favorite place is in her mom’s arms.
And even though her world has been filled with hospital walls and beeping monitors, she still finds light in the smallest things — a lullaby, a soft blanket, a gentle touch.

Recently, the doctors shared what might be their last and best option: a major brain surgery.
It’s a procedure that could change Sage’s future — maybe even free her from the constant seizures that have controlled her short life.
But it’s also a terrifying choice for her parents.
The surgery will involve removing or disconnecting part of the brain affected by the syndrome — a complex, risky procedure that no parent can ever be truly ready for.

Still, they know it’s the best chance for Sage to live a life filled with more than just survival.
They dream of the day she can laugh without fear of a seizure interrupting.
Of the day she can play, dance, and explore — just like any other child.

Until then, they are taking things one day at a time.
One breath.
One smile.
One heartbeat.

They focus on what they can control — loving her fiercely, keeping her safe, and making sure that even in the hardest moments, Sage feels surrounded by warmth and care.
Her mother says, “We’ve learned to celebrate the little victories — a full night of sleep, a day without a seizure, a quiet moment together. They mean everything to us.”

Each day, they wake up and choose hope.
Because with hope comes strength — and with strength comes the courage to face whatever tomorrow brings.

Sage may only be nine months old, but she’s already shown the world what it means to be brave.
She’s proof that resilience isn’t about size or age — it’s about heart.
And hers is stronger than most people will ever know.

💜 Please keep this beautiful baby and her family in your thoughts and prayers.
They’re walking a hard road, but they’re walking it together — hand in hand, heart to heart, with love leading the way.

Because sometimes, the smallest warriors carry the biggest light. 💫