In 2022, after years of hoping and praying, a dream finally came true – we found out we were going to be parents. The joy was overwhelming. The pregnancy was smooth, every doctor’s visit brought reassurance, and our hearts were full of love and excitement. Until the 20th week.

That day changed everything.

During a routine mid-pregnancy check-up, we decided to do a fetal heart echo, just to be safe. What was supposed to be a moment of calm became the moment our world collapsed for the first time. The doctor told us that our baby boy would be born with acomplex congenital heart defect, one that would require surgery right after birth.

We cried for days. There were no words, no answers, only fear and pain. But we gathered our strength and went to theInstitute of the Polish Mother’s Health Center in Łódź, where the specialists monitored us until the end of the pregnancy.

And then, on April 27, 2023, after months of fear and waiting, our miracle arrived —Hubert. The moment we saw him, time stopped. But our joy was short-lived. Within moments, he was taken from the delivery room to the neonatal ward and given medicine to help him survive until his heart could be operated on.

At just 14 days old, our little boy underwent his first open-heart surgery.

The procedure saved his life, but complications followed. Hubert developed atelectasis in his left lung,left-sided diaphragm paralysis, and vocal cord paralysis. He had to stay in the hospital for weeks. We lived between fear and fragile hope, learning how to care for him in a world full of wires, monitors, and medical machines.

When we finally came home — more than a month later — we were the happiest people alive. Despite all the pain and exhaustion, we were together, and that was all that mattered. Hubert was fragile but full of willpower. We started rehabilitation right away, and with time, he began to grow stronger. He smiled, played, and developed just like any other baby.

But in our hearts, there was always one shadow — the next heart surgery.

In February 2024, we were admitted again to the cardiology department in Łódź for tests before the planned procedure. It was then that doctors noticed something new —elevated liver enzyme levels. At first, we hoped it was just a side effect of the medications. But the numbers kept getting worse.

Worried, we traveled to Warsaw to see a liver specialist. More tests followed. And then, just beforeMother’s Day, we received a devastating preliminary diagnosis — muscular dystrophy.

Further genetic testing confirmed our worst nightmare: Duchenne Muscular Dystrophy (DMD) — one of the most severe and incurable forms. This disease attacks the muscles — all of them. The skeletal muscles that allow movement, the muscles that control breathing, and even theheart, already so fragile in Hubert’s case.

It was the second time our world collapsed.

We couldn’t stop crying. To watch your only child — your miracle — face such a cruel fate is unbearable. DMD slowly robs a child of movement, independence, and finally, life itself. Without treatment, Hubert will one day lose the ability to walk, then to breathe, and will die before reaching adulthood.

But there is hope. A gene therapy in the United States offers a chance — maybe the only one — to stop this disease before it’s too late. This treatment could save Hubert’s life.

The cost, however, is staggering: 17 million złotych (around 4 million USD).
On top of that, there are costs for travel, rehabilitation, and months of stay abroad. It feels impossible. But for our son, we must try.

Just a month ago, Hubert underwent his second open-heart surgery. The doctors repaired his tiny heart once again, and within a week, he was smiling, playing, and showing the same unbreakable will to live that defines him. Twice already, he has looked death in the face and survived.

Now, we are asking for one more miracle — the third escape from death.

We are just ordinary parents. We cannot save him alone. But together, with your help, we can give Hubert the life he deserves — a life free from pain and fear.

We are begging for your support. Every donation, every share, every act of kindness brings us closer to saving our little boy.

Seventeen million złotych sounds impossible. But if17 million hearts come together, it becomes hope — real, living hope.

Hubert is a fighter. A tiny warrior with the heart of a lion. All he needs now is the chance to keep fighting.

Please, help us give him that chance.
Help us save our son.