From the very first moment of Kaja Wróbel’s life, it was clear that her journey would be unlike that of other children. Born with an extremely rare genetic defect caused by a faulty

PIGN gene, Kaja’s life has been shaped by constant challenges. This condition carries a spectrum of difficulties, including intellectual disability, epilepsy, developmental delays, and multiple health complications that interfere with her ability to communicate, move, and interact with the world around her.

While most children reach developmental milestones naturally, every step Kaja takes is hard-won. She is able to say only two words: “mama” and “no”. For the rest, her world is filled with obstacles that require constant care and intervention. Every day involves structured support from her parents, therapists, and medical professionals to help her engage with her surroundings, learn new skills, and maintain basic functions like eating safely.

One of Kaja’s most critical challenges is drug-resistant epilepsy. Each seizure not only causes immediate distress but also irreversibly damages her developing brain, slowing her progress and creating additional complications such as thyroid problems. Her mother has watched, day after day, as Kaja suffers through these episodes, and has had to summon every ounce of strength to remain hopeful and steadfast in her fight for her daughter’s life. The fear of what each seizure could do, the concern that progress may be lost in an instant, weighs heavily on the family, yet they persevere, driven by love and determination.

Rehabilitation is Kaja’s lifeline. Intensive therapy sessions focus on improving mobility, communication, and daily living skills, helping her gain independence despite the limitations imposed by her condition. These sessions are not merely exercises — they are essential interventions that stimulate her brain, strengthen her muscles, and allow her to gradually interact more fully with her environment. Through these therapies, Kaja experiences small but meaningful victories: a slight movement, a moment of attention, or a response to a caregiver’s prompt. Every milestone, however minor it may seem, is a testament to her resilience and the tireless dedication of her family.

Thanks to the generosity of previous donors, Kaja has already been able to attend some therapy sessions. The family has seen firsthand the difference this support can make. Every session attended, every specialist consulted, every piece of equipment purchased has brought her closer to functioning at her potential. Yet the path ahead remains long and arduous. Kaja requiresongoing, intensive rehabilitation and specialized medical care, all of which carry a significant financial burden. Her family cannot manage these costs alone.

This is why her mother reaches out now, with a mixture of hope and urgency. The experimental therapies, specialized equipment, and frequent rehabilitation sessions that Kaja needs are essential to ensure she continues to progress. Each contribution, no matter the amount, directly impacts her ability to receive treatment, cover therapy costs, and access the medical support required to help her body and brain develop as fully as possible. Donations make tangible improvements in her daily life: better mobility, safer feeding, improved communication, and a chance at learning skills that many children achieve effortlessly.

Kaja’s story is not just one of medical struggle — it is a story of resilience, courage, and the unbreakable bond between a parent and child. Despite the obstacles, Kaja shows incredible determination. Her mother’s devotion is unwavering, and together, they face each day with hope, advocating for every opportunity to improve her quality of life. Every therapy session, every piece of equipment, and every medical consultation represents a step forward, and a chance to give Kaja the future she deserves.

The need is immediate, and the stakes are high. Kaja’s condition will not improve without continuous, specialized care. Interruptions in therapy or delays in medical treatment could compromise her development and limit her ability to achieve independence. By supporting Kaja, donors become part of a community of care, offering hope where it is most needed and providing the tools for a child to thrive despite overwhelming odds.

💛 Support Kaja today. Every donation, every share, every act of kindness brings her closer to continued rehabilitation, specialized care, and the chance for a fuller, more independent life. Help ensure that this brave little girl can continue to grow, learn, and experience the joys of childhood despite her rare genetic challenges.